Calling all Study Coordinators, Data Managers, Fellows, Investigators and Research Nurses

This year’s Combined Consumer and Study Coordinator Forum on Monday 14 November 2022, 10am–3pm, covers the topic of extending access and increasing equity in clinical trials, including across regional, rural and remote areas as well as culturally diverse and First Nations peoples.

On the day

The theme for this meeting draws upon the need for equity of access to therapeutic options across regional, rural and remote (RRR) areas, as well as culturally diverse and First Nations populations. This is a priority area for the AGITG.

Our expert panellists will discuss the multiple contributing factors that lead to a disparity in representation and access to clinical trials, especially in rural and regional areas. These include reduced capacity and infrastructure at RRR cancer care services, restrictive eligibility criteria, and the increasing complexity of trial designs. Patients seeking to participate in clinical trials face complex barriers too, including geographical distance to the trial centre and the associated expense, limited trial-related literacy, disruption to home and work life, and opposing cultural values.

Also up for discussion are solutions to facilitate diverse trial participation including the emerge of new trial models. We will explore the role of big data and artificial intelligence in research, including their impact on reducing barriers to both patient and trial centre participation in Australia and New Zealand. Genetic testing and drivers for personalised medicine in the current era will also be explored, along with the use of substudies to enrich trial data.

We would like our members and committees to encourage attendance at this forum.

Topics and speakers

1. Big data and artificial intelligence – how they apply to research
Dr Peter Summons

2. Case presentations and panel discussion: Strategies to extend access and increase equity in clinical trials

Culturally and linguistically diverse populations
Associate Professor Reema Harrison

Aboriginal and Torres Strait Islander peoples
Professor Gail Garvey

Māori population, data sovereignty and biological samples
Dr George Laking

Decentralised trials
Anne Woollett

3. Panel discussion and Q&A, chaired by Jan Mumford and Bruce Cheek
Dr Peter Summons, Associate Professor Reema Harrison, Professor Gail Garvey, Dr George Laking and Anne Woollett

4. Genetic testing and personalised medicine
Associate Professor Lara Lipton

5. Value-adding substudies
Associate Professor Richard De Abreu Lourenço

6. Q&A, chaired by Marlyse Debrincat and Roslynn Murphy
Associate Professors Lara Lipton and Richard De Abreu Lourenço

Partnering with the ASM

Study coordinators and nurses are invited to attend the 24th AGITG Annual Scientific Meeting at Pullman Melbourne Albert Park, 14–17 November 2022. Known throughout Australasia as the premier meeting in the GI cancer space, the ASM provides an innovative platform to engage members with new research concepts, trial developments, panel discussions and Q&A sessions.

Should you wish to attend the AGITG ASM in its entirety, scholarships are available.

View all scholarships here

Travel sponsorships are also available for AGITG Members.

Applying for membership to the AGITG is free – join today.

Join the AGITG

Meet the Experts

Chairs

Evonne Tim

Evonne Tim is Senior Trial Operations Coordinator at the NHMRC Clinical Trials Centre (CTC) and works on the AGITG studies ASCOLT, CONTROL NETs and TOPGEAR. She has worked both in industry and in academic organisations. Her experience is well-rounded and includes data management, trial monitoring, site start-up and operations management and coordination. She is passionate about supporting site trials staff, so they can best support our participants and their families.


Chris Brooks

Chris has worked in Oncology or Critical Care since she started nursing including roles in Haematology, Oncology, Chemotherapy Day Unit, Practice Nurse as well as Haematology and Oncology Research, covering Early Phase and other specialty areas. Chris was the Team Leader for Early Phase Oncology Research and has recently been appointed Research Manager at Alfred Cancer Trials. She is a strong advocate for patient centred care and ongoing education of both patients and staff.  She is committed to team, professional and process development.


Jan Mumford

Jan became involved in health advocacy after being diagnosed with a neuroendocrine pancreatic cancer, now 20 years ago. Her working role with Genetic Alliance Australia is providing services to those concerned with genetic health, advocacy education and support for people and families with rare genetic conditions. Jan’s volunteer work with cancer support cancer has extended into providing a consumer voice in research with AGITG, researchers NSW Cancer Council and NSW Cancer Voices. She joined AGITG in 2009 and has held the role as Chair for the Consumer Advisory Panel, Upper GI Committee and TMC for Masterplan and SGGXXII.


Marlyse Debrincat


Dr Roslynn Murphy

Roslynn Murphy is a Project Manager in the DYNAMIC circulating tumour DNA (ctDNA) Study Team based at the Walter & Eliza Hall Institute of Medical Research (WEHI) in Melbourne, Australia. The ctDNA team is responsible for overseeing the conduct of the AGITG-sponsored DYNAMIC studies at over 50 participating sites in Australia, New Zealand and Canada. She has been involved in various areas of clinical research for over 10 years and has managed investigator-initiated studies including drug and medical device trials. Roslynn has a particular interest in pancreatic cancer research.

Speakers

Dr Peter Summons

Peter’s interest and research is in areas of information systems education, and the application of information and knowledge-based systems for business, medicine, and health. An active health informatics researcher, Peter collaborated locally with researchers in the Acute Pain Service at the John Hunter Hospital. He consulted to the Hunter Area Pathology Service (HAPS) and Pathology North from 2001-2013. He has an interest in the health outcomes of persons in vulnerable situations and older persons in acute and chronic pain.


Associate Professor Reema Harrison

Associate Professor Reema Harrison leads the Healthcare Engagement and Workplace Behaviour research stream at the Australian Institute of Health Innovation in Macquarie University. A/Professor Harrison also holds adjunct appointments with UNSW School of Population Health and the Institute of Psychological Sciences at the University of Leeds (UK). A/Professor Harrison is a mixed-methods researcher with expertise in using co-design and participatory approaches with diverse populations. She has a strong track record of translational health systems and services research, with demonstrated policy and practice impacts. As a result, Reema is identified in the top 10% of patient safety experts internationally, being one of the top five in Australia (expertscape).


Professor Gail Garvey

Professor Gail Garvey is a senior Aboriginal researcher with over 30 years of experience in Indigenous health and education. She is currently Professor of Indigenous Health Research in the School of Public Health at the University of Queensland. She has established an extensive and targeted research program focused on cancer and wellbeing and Australia’s First Nations people. She currently leads a National Health and Medical Research Council Centre of Research Excellence in targeted approaches to improve cancer services for Indigenous Australians.


Dr George Laking


Anne Woollett

Anne is Director of Clinical Trials, TrialHub, at the Alfred. In this role she is responsible for the establishment of the TrialHub Directorate and the development and implementation of the TrialHub initiatives as well as supporting the oversight and development of clinical trials at The Alfred and at partner sites. Anne has over 25 years’ experience working in a broad range of fields in oncology clinical trials including clinical trials development, processes and governance at local, state and national levels.


Associate Professor Lara Lipton

AProf Lara Lipton works at Peter MacCallum Cancer Center, Cabrini Health and Western Health in Melbourne. Her principal area of work is gastrointestinal cancer and she also works in the Royal Melbourne Hospital and Cabrini Family Cancer Clinics. After returning to Australia after a PhD at Cancer Research UK in colorectal cancer genetics she has continued research into gastrointestinal cancer, primarily upper gastrointestinal cancer and is the current Acting Chair of the Upper Gastrointestinal Working Party for AGITG. She is active in fundraising for the AGITG.


Associate Professor Richard De Abreu Lourenço

Richard is an Associate Professor with CHERE. He is an experienced health economist who has a keen interest in applied economic evaluations, patient preference and quality of life and the economics of specialty health areas. Currently, he is the program lead for the Cancer Australia Cancer Research Economics Support Team, and the Senior Evaluator for CHERE’s PBAC evaluation group. He is an investigator on a number of cancer clinical studies and studies investigating preferences for health care decision making.